Forum to get advice on Foetal Alcohol Syndrome

Banbury Cake: Julia Brown and daughter Niamh Julia Brown and daughter Niamh

AN online forum for parents of children with a rare condition caused by drinking while pregnant has been launched in Oxfordshire.

Julia Brown founded the Foetal Alcohol Spectrum Disorder Trust after her adopted daughter Niamh was diagnosed.

Foetal Alcohol Syndrome (FAS) is caused by drinking during pregnancy and can cause lifelong brain damage.

In extreme cases, such as Niamh’s, sufferers are unlikely to be able to live independently.

Mrs Brown, from Finstock, said she was inspired to set up the forum – which she hopes will one day be as popular as patenting site Mumsnet – after her own early Internet searches for help drew a blank.

She said: “These days the first thing people do when they are looking for help and advice, is turn to the Internet.

“That is what we wanted to do – offer a place for people to share experiences and offer advice.”

Mrs Brown and her husband Simon adopted Niamh when she was a baby.

Niamh was five when her adopted parents realised she was slow in doing things for her age, such as crawling and walking.

After an arduous process, Niamh, now 13, was eventually diagnosed with FAS.

The forum can be reached at fasdtrust.healthunlocked.com

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Comments (4)

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12:23am Tue 31 Jul 12

goshua says...

Beg too disagree. far to much negativity around FAS and FASD, please
think posotive all our Children are effected in different ways.
We have Two Children one with full FAS and one FASD , both now adults
both in full employment and independant., with good parenting and support
mainly schools understanding teaching methods and support services.
Beg too disagree. far to much negativity around FAS and FASD, please think posotive all our Children are effected in different ways. We have Two Children one with full FAS and one FASD , both now adults both in full employment and independant., with good parenting and support mainly schools understanding teaching methods and support services. goshua

11:08am Tue 31 Jul 12

goshua says...

I recently attended a FASD Education workshop at a NHS Hospital, attended by many Teachers, Consultants, and Professionals , with
lots of excellent advise . Teaching and support resources from this are
now available free from this workshop, can be downloaded at www.fasaware.co.uk . They also have a National FASD Parent/ Carers support forum and facillitate lists of all FASD Support Groups in the UK
I recently attended a FASD Education workshop at a NHS Hospital, attended by many Teachers, Consultants, and Professionals , with lots of excellent advise . Teaching and support resources from this are now available free from this workshop, can be downloaded at www.fasaware.co.uk . They also have a National FASD Parent/ Carers support forum and facillitate lists of all FASD Support Groups in the UK goshua

9:14pm Wed 1 Aug 12

Surfboy says...

I am dad to kids with FASD and I would not hve been able to do it without the help of The FASD Trust. Not found them negative. They have loads of resources on their website, www.fasdtrust.co.uk. They do great local training in Oxfordshire; been to some. Bringing up these kids is hard but a joy.
I am dad to kids with FASD and I would not hve been able to do it without the help of The FASD Trust. Not found them negative. They have loads of resources on their website, www.fasdtrust.co.uk. They do great local training in Oxfordshire; been to some. Bringing up these kids is hard but a joy. Surfboy

10:20pm Wed 1 Aug 12

goshua says...

I Quite agree with you , From experience there is alot of negativity not
much focus on posotive solutions, early intervention's 0 too 7 , My two are Adults now , yes i had too use Canada some 23 years ago www. fasdoutreach.ca. and home tutor our children . Not much in the UK except
volantry groups , Bit of education just out . I am retired now it's been hard
that i agree on . wish you all the best for you and your family , our's even as Adults will always have FAS / FASD but have learnd control and how too live
with it, make know asumptions it's still like walking on egg shells.
All FAS/ FASD Children are different .
I Quite agree with you , From experience there is alot of negativity not much focus on posotive solutions, early intervention's 0 too 7 , My two are Adults now , yes i had too use Canada some 23 years ago www. fasdoutreach.ca. and home tutor our children . Not much in the UK except volantry groups , Bit of education just out . I am retired now it's been hard that i agree on . wish you all the best for you and your family , our's even as Adults will always have FAS / FASD but have learnd control and how too live with it, make know asumptions it's still like walking on egg shells. All FAS/ FASD Children are different . goshua

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